Showing posts with label national foundation for transplants. Show all posts
Showing posts with label national foundation for transplants. Show all posts

Monday, April 11, 2011

April Patient of the Month: Dale Shaylor


Dale Shaylor grew up in the remote parts of the Amazon in Venezuela, where his parents were missionaries. When he was only 13, Dale and his family were shocked to learn he had contracted hepatitis B and D while living in the jungle. He lost both his grandfather and aunt after they also contracted hepatitis from their time in the Amazon. His condition has worsened to cirrhosis, requiring his family to return to the U.S. for medical care. Doctors say a liver transplant is his only hope for a second chance at life.

Dale and his wife, Katie, have three children: Joel, Amber and Jemual. He enjoys reading, taking bike rides with Katie and spending time with their children. He loves his job as a bush pilot in Venezuela, but Dale's illness does not allow him to work or participate in many activities.

Although he has gone through many challenges, Dale relies heavily on his faith to guide him through life's obstacles. He is eager to return to his normal life, spend more time with his family and exercise. More than anything, he longs for the day he will be able to continue sharing his faith with others in Venezuela. But he needs your help. To learn more about Dale or to make a donation in his honor, click here.

Wednesday, March 16, 2011

March Patient of the Month: Paul Adkins

In 2001, after years of struggling for every breath, Paul received a lifesaving lung transplant. His doctor compared the transplant to a marriage, saying "when you find the perfect mate, it's for life." Paul's new lung has survived a heart attack, quadruple bypass, back surgery and pneumonia.

But now Paul's health is failing, and he was recently diagnosed with focal segmental glomerulosclerosis, an illness that causes scar tissue to build up in the kidneys. His immune system is heavily suppressed from his essential anti-rejection medications, eliminating dialysis as a treatment option. Doctors say a kidney transplant is critical for his survival.

Paul considers himself blessed to have two perfect marriages: Shirley, his wife of 45 years, and his lung transplant. His children and grandchildren want nothing more than to see him healthy again. The shortage of organ donors has created difficult odds for Paul to find a match, but his granddaughter, Sarah, is being evaluated to donate one of her kidneys for a paired kidney exchange program. She's not a compatible match for Paul, but she'll donate her kidney to another patient in exchange for someone else donating to save her grandfather's life. His family hopes this will give Paul a better chance of finding a donor match soon.

Friday, March 4, 2011

Happy new birthday to you!

We are so happy for our patients who recently received their lifesaving transplants! Many people are unaware of the lifetime of expenses related to transplants and the essential medications and follow-up care. NFT is dedicated to helping these patients continue to raise funds so they can return to a normal life without worrying about the expenses.

Kerry Baumann (lung/liver/pancreas) at Duke Univ. Medical Center

Tuesday, February 1, 2011

NFT Patients Who Received Transplants in January

We are so happy for our patients who received their lifesaving transplants last month! Many people are unaware of the lifetime of expenses related to transplants and the essential medications and follow-up care. NFT is dedicated to helping these patients continue to raise funds so they can return to a normal life without worrying about the expenses.

Wednesday, January 26, 2011

Beans for Better Life

Beans for Better Life provides a unique opportunity for your fundraising campaign. Sales of this coffee will not only support your campaign, but also the needs of farming communities around the world--that's an awesome proposition! Beans for Better Life only provides Fair Trade Certified ™ coffees.

Each case contains 24 bags of coffee (12 oz.), and both regular and decaffeinated options are available. By selling regular coffee for $10/bag and decaffeinated coffee for $12/bag, you could make a profit of $58.20 per case.

Please contact your fundraising consultant for more information and to place your orders.

Monday, January 3, 2011

Tuesday, December 14, 2010

NFT Patients Held More Than 200 Fundraisers in 2010

Congratulations to the countless volunteers who held successful fundraisers in honor of NFT patients in 2010! This year, more than 200 events were held across the country to raise funds in honor of our transplant patients.

Thank you to the volunteers, friends, family members and community supporters who made this possible! If you were involved in an NFT fundraiser, please feel free to send your event details and photos to info@transplants.org. We love to hear about them!

Tuesday, December 7, 2010

NFT Patient Gets Law License One Year After Near-Death Coma

The following article is from The Daily Citizen in Dalton, GA:

A year ago [...], Nancy Burnett was lying in a coma at Hamilton Medical Center, her life hanging in the balance as her damaged liver continued to poison her body.

Last month, Burnett, a liver transplant recipient, was alert and being sworn in as a member of the Georgia Bar Association as about 20 family members and friends gathered to watch at the Whitfield County Courthouse.

What a difference a year can make.

A member of the bar associations in both Tennessee and New York, Burnett has been a practicing attorney since 1990. In October 2008, however, she was forced to move back in with her family in Dalton after she became extremely ill with non-alcoholic steatohepatitis (NASH), a disease of the liver prevalent in obese individuals.

Years of problems had gone undiagnosed as doctor after doctor failed to understand what caused her legs to leak clear fluid, her mind to become slow and confused and her body to begin shutting down. When Burnett was finally diagnosed, she was shocked, she said. As her condition grew progressively worse, Burnett developed hepatic encephalopathy, a condition that clouds the brain as the body becomes unable to rid itself of the ammonia it produces through normal eating.

Burnett moved in with her brother, Mark, and mother, Pat in Dalton. By then, she could no longer add, subtract or sign her name, let alone practice law.

After Burnett recovered from her coma at Hamilton, she was able to return home only to be hospitalized again at Memorial Hospital in Chattanooga within a week of being released. Burnett said she was sent to Memorial because of her insurance and later went to Piedmont Hospital in Atlanta for tests and eventually for a liver transplant in January.

“I had to lose weight to get the surgery,” she said. “From my heaviest to my thinnest, I’ve lost 150 pounds. I’ve gained some of that back. I’m about a hundred pounds lighter than I was.”

Burnett described liver disease as “a silent killer,” explaining the doctor who diagnosed her estimated she’d had problems for 15 to 20 years. Burnett, who has been listed as an organ donor for most of her adult life, said she did not notice anything was wrong until about 2003 or 2004.

Kathleen Tancrede of Tunnel Hill, one of Burnett’s sisters, said Burnett spent the Thanksgiving, Christmas and New Year’s holidays as well as her birthday last year in the hospital. Burnett turns 48 on Monday and will celebrate by opening her law office at 217 W. Crawford St. where she plans to be a general practitioner.

“I’ll be doing divorce for sure because I did that for 12 years up in New York,” she said. “I’ve done a lot of bankruptcy in New York, so I’ll probably pick that up.”

Burnett was sworn in before Superior Court Judge Jack Partain on Friday along with law interns Robert Mikell and Kevin Morris, both of whom are completing year-long internships in the superior court system. Burnett has volunteered her time as a clerk at the office since July.

Judge Robert Adams said he has observed “a high standard” in Burnett and that she often took care of problems before he was even aware they were there.

Mark Burnett said seeing his sister be sworn in to practice law in Georgia was like watching a family member get a gold medal in the Olympics. In addition to her brother and sister, her mother, Pat, her father Reg and her stepmother Jean as well as several other family members and friends were all present.

Family members said several community members had donated money to her to help her cover her more than $100,000 in medical bills, and local churches had prayed for Burnett to get better. Burnett said she awoke from her coma at Hamilton on a Sunday shortly after morning church services released.

“There were at least three or four local churches praying for me,” she said. “It just really confirmed my belief (in the power of prayer).”

“I’m just so grateful to the community for all the support that they’ve given me and for the (50-year-old female) donor that she elected when she was alive to be a donor when she died,” she said.

Burnett graduated from Dalton High School in 1981 and was the STAR Student that year in recognition of having the highest SAT score at the school, she said. As a reward, she and other STAR students across Georgia received a tour of the state and were able to briefly meet Jimmy Carter.

Burnett graduated from Georgia State University, changing her major a few times as her interests swung between computer programming, international studies and accounting. Finally, her parents suggested she pursue a career in law.

“I fell absolutely in love with the study of law,” she said. “It absolutely captivated me. The study of law is very elegant.”

Burnett attended law school at Georgia State University for her first year then graduated in 1989 from Albany Law School in New York. She practiced in New York for 12 years and since 2003 in Tennessee.

Monday, November 29, 2010

NFT Christmas Angel

Transplant patients are dealing with very difficult physical, emotional and financial situations. As you might imagine, the financial burdens associated with transplantation often make celebrating the holidays impossible for families. For the past three years, generous families and groups have reached out to NFT asking if they could play Santa for a transplant patient and their family.

In 2008, NFT patient Wess Holston and his family were overwhelmed by the generosity of an anonymous donor family.

“May God bless the Denver family,” said Katrina, Wess’ wife. “There will be tears of joy this Christmas, not tears of guilt. There are no words to describe how much this means to us, and we thank this family and NFT for their help. Our children are going to have a great Christmas this year.”

If you would like to surprise an NFT patient by supporting them during the holiday season, please contact us at info@transplants.org.

Wednesday, November 17, 2010

A Country Wedding Fundraiser

NFT patient Karen Ettinger needs a double-lung transplant to survive. Her twin brother, Kevin, wanted a way to help her raise funds for the lifesaving treatment. He owns a collection of antique wedding dresses and invited people to his home to see the collection, while raising funds in honor of NFT.

They raised nearly $6,000, and the event was such a huge success that they may hold a second one in the spring! A portion of the funds raised came from a raffle in which lucky winners received items such as a christening gown and a gift certificate from designer Alfred Angelo.













Thursday, November 11, 2010

National Donor Sabbath

This weekend, November 12--14, is recognized as the National Donor Sabbath.

National Donor Sabbath is part of an organ donation initiative launched by the Department of Health and Human Services in 1997. Observed on Friday through Sunday two weekends before Thanksgiving, the 3-day period seeks to include the days of worship of major religions practiced in the U.S.

Transplant professionals collaborate with faith communities to focus on the lifesaving gifts of organ, tissue and marrow donation. Faith leaders and congregations participate in services and events to increase awareness of donation and transplantation. Most major religions view organ and tissue donation as a compassionate and generous gift.

The need for donors increases each year. Currently, nearly 110,000 Americans are on the organ transplant waiting list. According to OrganDonor.gov, an average of 3,000 individuals at any given time are searching for an unrelated blood stem cell donor.

Those who donate organs, tissue, and blood stem cells restore hope and share gifts beyond measure. For more information about becoming an organ donor, visit the NFT website. Together, we can continue raising hope and changing lives.

Friday, October 29, 2010

A Bluegrass Emergency

The following article is from the Cary Citizen.

After recovering from having a heart pump implanted this past spring, musician Jan Johansson was added back onto the heart transplant waiting list in July. His friends have organized a fundraiser to help him and his wife, Theresa, defray his medical expenses. PineCone helped with a benefit held at Sertoma Amphitheatre this past June. That event raised about $4,000.

On November 7 there will be another benefit concert to raise funds for the Johanssons at Cary’s Sertoma Amphitheater.

Among the musicians and bands confirmed for this latest benefit concert is David Tate, a banjo player who is also Johansson’s cardiologist at UNC-Chapel Hill. Tate plays with the band Fescue 911, which has been “on-call for bluegrass emergencies” since 1993.

And what could be a more fitting emergency than a bluegrass musician in need of a heart transplant?

To read the full article, click here.

Tuesday, October 19, 2010

Bingo Fundraiser a Big Hit!

Volunteers for NFT patient Richard Calm held a successful bingo fundraiser last month. For $20, attendees played bingo and had a hot dog lunch with chips and a drink! Gift baskets were also given away in a raffle, and baked goods were available for a donation. The event raised nearly $2,000 in honor of Richard!

If you'd like to plan a bingo fundraiser for your campaign but need a few ideas or tips, feel free to contact us at info@transplants.org.

Richard's grandson Thomas with his great-grandmother.


The gift basket table.



Friday, October 8, 2010

October Patient of the Month: Vicki Lauer

In 2004, Vicki was in an accident that caused an inhalation injury. She awoke in the ICU after being in a coma for two days, and she was diagnosed with end-stage lung disease. Her disease has worsened over the years, and doctors say a double-lung transplant is essential to her survival. While she awaits her lifesaving transplant, she depends on an oxygen tank 24 hours a day.

Her illness has caused many challenges for Vicki, emotionally, physically and personally. However, she is grateful for the lessons she has learned, and she looks forward to receiving a second chance at life. Vicki says if she is blessed with her transplant, she will spend more time paying attention to the truly important things in life and encourage others to do the same.

A double-lung transplant costs approximately $650,000. And that's only the beginning. Before the hospital will add her to the transplant waiting list, she must raise $40,000.

Although she loves her work as a clothing designer, she is currently unable to work because cutting and draping the fabrics is too physically taxing, adding to her financial strain. Because she lives more than 175 miles from the transplant center in New Orleans, she must temporarily relocate to be near the hospital during recovery, incurring significant expenses for travel, food and lodging.

To learn more or to donate to NFT to assist Vicki with her transplant-related expenses, visit her web bio of the NFT website.

Tuesday, October 5, 2010

Let NFT Tell Your Story!

Are you an NFT transplant patient whose friend has been by your side throughout every health challenge you've faced? Has a friend offered to be your donor match or done something else incredibly generous for you?

A national health magazine is looking for powerful stories about friendships, and NFT's marketing department would love to hear from YOU. The deadline for us to pitch the story is Tuesday, October 6 at 7 p.m. EST, so act quickly!

If you have a story we can share on your behalf, please contact us at info@transplants.org.

Living Kidney Donation Webinar

KidneyLink is hosting “Learning About Living Kidney Donation,” a webinar hosted by Harvey Mysel of the Living Kidney Donors Network on Tuesday, October 12 at 8 p.m. (ET). The webinar will teach people how to raise awareness about living kidney donation and how to tell others about their need for a kidney transplant.

Medical professionals say the only way to increase kidney transplants is to increase the number of kidneys available. Living kidney donation is a key way to help this occur. Many people, however, don’t know a lot about living kidney donations or are afraid to ask someone for a kidney.

To learn more about the upcoming webinar or to register to attend, visit the KidneyLink website.

Monday, September 27, 2010

NFT Patient Has Successful Spaghetti Luncheon Fundraiser!

Ross Gathings is awaiting a kidney/pancreas transplant. When Ross was 9 months old, he was diagnosed with diabetes, which he has been fighting his entire life. In 2002, he began to lose kidney function, and by 2009 his kidneys had completely failed. Most recently, Ross was diagnosed with end-stage renal failure and pancreas failure.

Volunteers recently held a spaghetti luncheon in Ross' honor to help offset the costs of his medical expenses. The event was a huge success and raised more than $2,700!





Friday, September 24, 2010

Let NFT Help With Your Media Outreach!

Did you know NFT's marketing department is ready to help you promote your events by reaching out to your local media? If you are planning an event, be sure to contact your fundraising consultant and ask for our fundraising event form to provide us with the details we need to create a press release.
  1. NFT has access to an extensive database of media outlets across the country. We can create a distribution to quickly and easily reach your local media.
  2. Many newspapers and TV stations have specific guidelines for how press releases should be written and submitted, and some will discard a press release if it's written incorrectly. NFT's marketing department follows those guidelines with every press release to increase the likelihood of media coverage. Many papers will print our releases word for word.
  3. Receiving a press release or media request from NFT provides credibility to the story and fundraising campaign.

Wednesday, September 8, 2010

September Patient of the Month: David Fraser

Around Easter of 2009, David Fraser and his family had just arrived at the beach for vacation when he had a seizure while unpacking the car. He was rushed to the hospital, and was soon transported to a larger hospital in Orlando, where he stayed for nearly a week. For the next few months, numerous tests and procedures were done until doctors discovered David was suffering from liver disease. Doctors told him a liver transplant was essential to his survival. Thankfully, he received his lifesaving transplant earlier this month and is recovering well.

This hardworking man has a positive attitude and sees no point in focusing on the negative things in life. Even throughout multiple hospitalizations, he has remained optimistic. His personal motto is, "What possible benefit can I get from having a bad or sour attitude?"

David and his wife, Vickie, have three children who hate seeing their dad so sick. His young son still says, "Daddy, don't pick up the black suitcase!" because that is the last memory he has before seeing his dad suffer from a seizure. David loves to spend time outdoors, golf, attend sporting events and play with his children, but his health has prevented him from enjoying his favorite activities very often. Before becoming ill, he spent countless hours volunteering for local charities and planning fundraisers for organizations such as the American Red Cross and Huntington's Disease Society of America. Now, he simply looks forward to resuming a normal life without feeling exhausted all the time.

A liver transplant costs approximately $500,000. And that's only the beginning. Even with health insurance, David faces significant medical expenses related to his transplant. For the rest of his life, he will need follow-up care and daily anti-rejection medications. The cost of post-transplant medications can range from $2,000 to $5,000 per month--and they are as critical to his survival as the transplant itself.

To read more about David or to make a donation to NFT in his honor, visit his web bio.