Showing posts with label heart transplant. Show all posts
Showing posts with label heart transplant. Show all posts

Friday, March 4, 2011

Happy new birthday to you!

We are so happy for our patients who recently received their lifesaving transplants! Many people are unaware of the lifetime of expenses related to transplants and the essential medications and follow-up care. NFT is dedicated to helping these patients continue to raise funds so they can return to a normal life without worrying about the expenses.

Kerry Baumann (lung/liver/pancreas) at Duke Univ. Medical Center

Thursday, February 3, 2011

February Patient of the Month: Troy Golden

When he was just 15 years old, Troy was diagnosed with mitral valve prolapse, meaning the valve separating the upper and lower chambers of his heart was not closing properly. Even with this condition, he had no real issues until he was in his late 20s. In 2000, doctors implanted an artificial mitral valve, but it had to be replaced in 2006, along with an aortic valve.

He now suffers from Marfan's syndrome, a genetic disorder affecting his heart's connective tissue. His brother battled the same illness and required a heart transplant 15 years ago. Troy has also been diagnosed with congestive heart failure, cardiomyopathy and cardiomegaly. Doctors say a heart transplant is critical to his survival.

Troy is participating in a clinical study and was the first person to receive a total artificial heart in his region of the country. He is only the second person in the United States to go home with the device implanted. Although his artificial heart is helping him regain his strength, it requires him to be with someone at all times, in case the device malfunctions. His new heart does not allow him to live a normal life and forces him to rely on others for every heartbeat.

To read more about Troy or to make a donation in his honor, please visit his bio on the NFT website.

Monday, December 13, 2010

Counting Her Blessings

The following article is from The Courier of Montgomery County.

After 14 years of common law marriage, Esmerelda and Jose Luis Miranda officially tied the knot, walking the aisle as friends and family smiled through tears at the La Torretta Lake Resort & Spa Sunday.

Recently as seven months ago, however, this scene would have seemed impossible to the bride.

“This is very, very special. A dream come true for us,” said Miranda, who resides in the Houston area. “I never thought this was gonna happen.”

More than 109,000 people are currently awaiting an organ transplant in the United States, according to LifeGift, a non-profit organization that recovers organs for people needing transplants. Less than a year ago, Miranda was one of them, awaiting a heart at the St. Luke’s Episcopal Hospital in Houston.

Born with a heart murmur, doctors have told Miranda that she would be able to live with the irregular heartbeat. However, she had gone through three open heart surgeries before collapsing in the street in her hometown of Weslaco in 2009 with a hole in her heart “the size of a silver dollar,” said Elvia Valdez, public relations coordinator for LifeGift.

On May 18, Miranda received a transplant after almost a year on the waiting list at St. Luke’s, which she referred as “one of many blessings” she’s experienced recently. The second blessing came from the Wish Upon a Wedding organization, which granted her a dream wedding at the resort, free of charge.

Heather Sims, president of the Houston chapter of the organization, said it was founded in January, and this is the first wedding put on by the Houston branch. Sims spoke with Miranda initially at a presentation at the St. Luke’s hospital several months ago, and Miranda’s story set her apart.

“It was the journey they had gone through to get to where they are,” Sims said.

The organization partnered with Wish Centers to provide the dress, rings, food and location for the wedding. Sims said “a lot of people came together to pull this off” and praised La Torretta for their help, “going above and beyond.”

“It’s a dream come true for all of us,” said husband Jose Luis Miranda. “We’re really appreciative for what they’ve done for us.”

Miranda said the wedding was especially important for her maid of honor, her 14-year-old daughter Josephine Marie Miranda.

“She’s so proud of her father,” Miranda said. “She told me she’s proud of how he’s stood by me through this. She has friends whose parents split up over less.”

Although family were in attendance, several invited guests were friends she has met through St. Luke’s Hospital. Linda Roberts, LVN, and Melissa Roberts, PCA, attended the wedding and said they have grown close to Miranda during her stay at the hospital, as they witnessed her highs and lows.

“We were there to see her when she had given up, so to see her at the wedding is amazing,” Carroll said. “You know you’ve come this close (to patients) when you go to their weddings.”

Randy Creech, of Kingwood, met Miranda through the hospital’s Heart Exchange Volunteer program, of which she also is a member. The group, made up of heart recipients, meets with people awaiting heart transplants and explains the process to them. Creech has seen more than 1,000 possible heart recipients in his 20 years with the program.

He said he was glad to attend the wedding and believes Miranda will continue to feel better with her new heart.

Miranda also volunteers with LifeGift’s Vital Volunteer program, and said her participation is important.

“Because somebody was there for me and explained to me what it’s going to be like,” she said. “I’m just giving back what was given to me.

“I was given a second chance at life. That’s the best gift you can give someone.”

Sofia Perches, outreach coordinator with St. Luke’s, said about 60 heart transplants are done every year at St. Luke’s Cooley Transplant Center and about 2,000 are performed across the country. According to LifeGift, although 10,000 Texans are currently awaiting organs, Texas is last in the country in registered number of donors.

Friday, October 29, 2010

A Bluegrass Emergency

The following article is from the Cary Citizen.

After recovering from having a heart pump implanted this past spring, musician Jan Johansson was added back onto the heart transplant waiting list in July. His friends have organized a fundraiser to help him and his wife, Theresa, defray his medical expenses. PineCone helped with a benefit held at Sertoma Amphitheatre this past June. That event raised about $4,000.

On November 7 there will be another benefit concert to raise funds for the Johanssons at Cary’s Sertoma Amphitheater.

Among the musicians and bands confirmed for this latest benefit concert is David Tate, a banjo player who is also Johansson’s cardiologist at UNC-Chapel Hill. Tate plays with the band Fescue 911, which has been “on-call for bluegrass emergencies” since 1993.

And what could be a more fitting emergency than a bluegrass musician in need of a heart transplant?

To read the full article, click here.

Tuesday, July 13, 2010

Total Strangers Reach out to Help Transplant Patient

The following article is from the News & Record in Greensboro, NC.

Michelle Matthews’ life changed forever when she had a massive heart attack in her kitchen on New Year’s Eve.

Since then, the 41-year-old Burlington woman has been struggling to survive while awaiting a heart transplant. Family and friends have helped her, but she was stunned when a pair of strangers stepped in to help her with medical bills.

Robert and Pamela Anderson, with the support of their church, have organized a July 17 golf tournament and fundraiser.

“I was really just absolutely shocked because they were strangers in my life,” Matthews said. “I am very thankful.”

Robert Anderson heard about Matthews’ situation through Charlotte Cox, a co-worker at Acutote in Graham. Cox, Matthews’ friend and roommate, has helped care for her.

“It just kind of evolved,” said Pamela Anderson of Burlington. “My husband and I are Christians, and we want to help those in need.”

Matthews was laid off three months before her heart attack and is too sick to work. The left side of her heart was destroyed.

“It looks like a bear has clawed the left side of my heart,” she said.

A battery-operated left ventricular-assist device is keeping her heart pumping until the transplant. She has been told her chances of getting a new heart are good, but she’ll face at least $12,000 in medical expenses in the two years following the transplant — and that’s if she can keep her medical insurance.

Despite the challenges, Matthews remains optimistic.

“I’m praying,” she said. “I believe that God has played a huge part in what has happened in my life.”

Matthews is looking forward to regaining her independent lifestyle and spending many more years with her 21-year-old son, who took a hiatus last semester from his studies at West Virginia University in Parkersburg to care for her.

The Andersons are working with the National Foundation for Transplants to promote the golf tournament. NFT is a nonprofit organization based in Memphis, Tenn., that helps patients raise money to pay for transplant-related expenses. The organization will pay the cost of renting the golf course.

St. Luke’s United Methodist Church will provide lunch at the end of the tournament.

The Andersons still need players and sponsors for the event.

They’re hoping for 18 teams (72 players).

Matthews plans to help as much as she can at the golf fundraiser in Mebane. She said she hopes the event will remind people about the importance of organ donation. “If you can have the opportunity to save somebody’s life, why wouldn’t you want to do that for somebody?” she said.

Monday, June 28, 2010

Three Heart Transplant Recipients to Compete in Iron Man Triathlon

Three transplant athletes will compete in the PPD Beach2Battleship Iron Man relay in November!

NFT patient Brian Barndt received a heart transplant in 2005 and has since received multiple medals at the transplant games. Heart transplant recipient Kyle Garlett will also participate, along with Mark Black, who is a heart and double-lung transplant recipient.

The men hope to use this opportunity as a way to raise awareness about the vital need for organ donors. NFT wishes them the best of luck and we look forward to following them on this journey!


Wednesday, March 17, 2010

Heart Transplant Recipient Runs 5K

On July 5, 2009, Nate Gunderson received a second chance at life thanks to a selfless woman who decided to become an organ donor. On March 13, 2010, Nate ran his first race since receiving his new heart in honor of his generous organ donor.

We are so proud of Nate!




Friday, February 19, 2010

New HeartMate II Pump is Latest Bridge to Life

Recently, USA Today featured an article about a new Left Ventricular Assist Device (LVAD) explaining how the advancements of the machine may save even more lives.

The HeartMate II is the second in a series of pumps designed to sustain heart-failure patients until a donor heart becomes available.

A souped-up successor to the HeartMate I, which offered patients only a short-lived reprieve, the HeartMate II has revived a dream that a mechanical device may serve effectively as a "destination" therapy for patients who can't find a donor heart or may not survive a transplant.

At NFT, we can assist patients with their LVAD expenses, as well as many other transplant-related expenses.

Click here to read more about the HeartMate II in USA Today.

Tuesday, February 16, 2010

Heart Transplant Recipient Patricia Hugghis

As you may already know, February is National Heart Month. Throughout this month, we hope to raise awareness about heart disease and the range of people it can affect.

After the sudden death of her older brother in 1982, Patricia underwent tests to see if she suffered from the same heart condition that killed him. Soon after, Patricia was diagnosed with cardiomyopathy. In 2008, Patricia's heart began to beat abnormally, which can be fatal. At this time, doctors told her a heart transplant was essential to her survival.

After waiting for more than a year, she received her lifesaving transplant on New Year's Day 2010 and is recovering well. Patricia takes 18 different medications daily to take care of her new heart. These medications are very expensive and are as critical to her survival as the transplant itself..

A heart transplant costs approximately $775,000. And that's only the beginning. Even with health insurance, Patricia faces significant medical expenses. For the rest of her life, she will need follow-up care and daily anti-rejection medications.

To learn more about Patricia or to make a donation to NFT in her honor, visit her Web bio on the NFT Web site.

Thursday, February 11, 2010

February Patient of the Month: Ricardo Wants a New Heart for Valentine’s Day

In 2007, Ricardo “Ricky” Santiago was diagnosed with cardiomyopathy, caused by medication he received as a child during chemotherapy treatments for leukemia. In 2005, doctors implanted a pacemaker to help regulate his heart. Although the pacemaker initially helped, doctors soon realized Ricardo needed a heart transplant to survive. He has been on the transplant waiting list for more than a year.

In 2008, Ricky underwent surgery to have a Left Ventricular Assist Device (LVAD) implanted, which will act as a mechanical heart until he receives his lifesaving transplant. Despite these challenges, Ricky remains positive and is thankful for the steadfast support of his family. He dreams of being able to pick up his 2-year-old son, Aries, and play with him the way he used to. He looks forward to the transplant that will allow him to once again travel with Jennie and Aries, work on cars, drive, go swimming and simply live life to the fullest.

A heart transplant costs approximately $775,000. And that's only the beginning. Even with health coverage, Ricky will face significant medical expenses. For the rest of his life, he will need follow-up care and daily anti-rejection medications. The cost of post-transplant medications can range from $2,000 to $5,000 per month--and they are as critical to his survival as the transplant itself.

To make a donation to NFT in honor of Ricky, click here. To read an article about Ricky and his family, visit The Day, his local newspaper’s Web site.

Friday, February 5, 2010

January Transplants for NFT Patients

The following patients received lifesaving transplants in January, and we are so happy for them!

As you may know, transplant patients face a lifetime of follow-up care and medications to keep their new organs healthy. NFT will continue helping these patients raise funds so they can focus on their new lives without worrying about the expenses!

Wednesday, January 13, 2010

January Patient of the Month: Misty Lea Hernandez

For some time, Misty Lea suffered from flu-like symptoms that slowly worsened. She eventually began feeling weak, coughing up blood and experiencing swelling in her legs and feet. After a trip to the emergency room, she learned she was suffering from cardiomyopathy. Doctors have told Misty Lea a heart transplant is essential to her survival. She is currently on the transplant waiting list at the Lutheran Hospital in Ft. Wayne, IN.

Despite her health challenges, 24-year-old Misty Lea is determined to beat her illness so she can spend many more years with her young son. She looks forward to being well enough to return to college, where she was studying criminal science. But she needs your help.

A heart transplant costs approximately $775,000. And that's only the beginning. Even with health insurance, Misty Lea faces significant medical expenses. For the rest of her life, she will need follow-up care and daily anti-rejection medications. The medications can cost as much as $5,000 per month--and they are as critical to her survival as the transplant itself.

After receiving the transplant, Misty Lea will be required to relocate more than 100 miles from her home to be closer to the transplant center, incurring significant expenses for travel, food and lodging.

For more information about Misty Lea or any NFT patients, visit our Web site.

Wednesday, January 6, 2010

Monday, August 24, 2009

NFT in Australia for World Transplant Games!

Brian Barndt began fundraising with NFT in 2005. After receiving a heart transplant in July of 2005, he has gone on to lead an active life as a teaching professional for total immersion swimming. Read Brian’s post below about his upcoming participation in the 2009 World Transplant Games in Brisbane, Australia. You can also learn more about Brian by visiting his blog, “Heart2Swim.”

Well, the title is partially true. I am in the Gold Coast with Team USA to swim in the World Transplant Games against the best transplant athletes in the world. However, I would not be in this position without the support of NFT in my life, both pre and post-transplant. NFT’s impact continues to this day.

As my family began the process of waiting for the phone call that could save my life in June 2005, we had to decide how to raise enough money to not only pay for my surgery and recovery, but also the years of expenses to follow. This was an arduous task, considering I was dying from heart failure after living with cardiomyopathy for 15 long years. NFT offered me wise counsel and great resources to set and reach our goal of $35,000. We were fortunate to have Connie Gonitzke as our advisor/coach during the fundraising. We met the goal!

Now, after four years of good health, I have been blessed to swim for Team NC at the 2006 & 2008 U.S. Transplant Games, winning seven gold medals and setting four American records. This year, I have the honor of representing Team USA as an elite transplant athlete, swimming with transplant recipients from 50 different countries. I will compete in five individual events: 50 & 100 meter backstroke, 50 & 100 meter breaststroke, 400 meter freestyle, as well as both the men's medley and freestyle relays!

I will compete in Brisbane, Australia on August 26 and 27. As I ponder this upcoming experience, I am humbled to be in this situation. There were many dark and frightening days during my illness, when my wife and two daughters were not sure if I would survive much longer. Therefore, I am filled with gratitude for the countless people who helped lift me to a position where I can strive for a gold medal at the World Games. NFT has played a pivotal role in making this dream a reality.


Swimming for life,

Brian Barndt
Visit Brian’s blog at http://www.heart2swim.com/ for updates during the World Transplant Games!

Wednesday, July 1, 2009

July Patient of the Month: Matthew Clark


While attending a college football game with some friends in the fall of 2008, Matthew Clark began experiencing breathing problems. A week later tests revealed a virus had attacked his heart, and he was suffering from congestive heart failure.

Doctors told Matthew a heart transplant is his only hope for a second chance at life. This father of four boys loves spending time with his children, whether he is coaching T-ball or playing video games. His faith, along with his strong desire to see his boys grow up, keeps him positive and focused on each new day.

A heart transplant costs approximately $750,000. And that's only the beginning. Even with health coverage, Matthew faces significant medical expenses related to his transplant. For the rest of his life, he will need follow-up care and daily anti-rejection medications.

Can you help Matthew and his family with his soaring medical expenses? To make a donation to NFT to assist Matthew with his transplant-related expenses, please visit his Web page on the NFT site.


Tuesday, June 30, 2009

Astellas Ride of a Lifetime Contest

It’s time to submit entries for the 5th annual Astellas Ride of a Lifetime contest! Five transplant recipients will win a five-night trip for two to California to ride on the Donate Life float during the Rose Parade on January 1, 2010.

The contest is limited to liver, kidney and heart recipients currently taking Prograf. Entrants must be at least 13 years old. One winner per geographical region (Northeast, Southeast, Mid-America, Great Lakes and Western) will be selected.

To enter, recipients must submit an essay of no more than 500 words describing how their lives were transformed by transplantation. All entries must be accompanied by a photo of the entrant. For more information, or to submit your essay online, please visit the Astellas Ride of a Lifetime Web site.

Deadline is 11:59 p.m. EDT on July 31, 2009.

Monday, June 29, 2009

Astellas' Transplant Experience

Astellas, the manufacturer of Prograf, has created a Web site especially for kidney, heart and liver transplant patients. This Transplant Experience Web site has specialized pages for each type of patient offering advice on healthy living before and after transplantation, as well as a number of support resources.

According to the Web site, “Transplant Experience is a program that can help you get the most out of each day and help you be ready for what’s ahead.” If you are a kidney, heart or liver transplant patient, visit Transplant Experience and find tips to live a healthier, more active life throughout your transplant journey.