Tuesday, January 26, 2010

Liver Transplant Recipient Chris Klug to Return to Winter Olympics

From the Los Angeles Times:

King of the comeback, Chris Klug is heading back to the Olympics.

Eight years after bringing his inspirational story to Salt Lake City, the 37-year-old snowboarder will return to the games in Vancouver.

Klug won a bronze medal in 2002 in parallel giant slalom, only 19 months after a successful liver transplant, but saw his chance for a return trip in 2006 quashed after losing an appeal over technicalities in the Olympic qualifying system.

To read the full story, visit the Los Angeles Times Web site.

To learn more about the Chris Klug Foundation and its dedication to promote organ and tissue donation through active sports, visit the organization's Web site.

Wednesday, January 20, 2010

Miss Washington Encourages You to Donate Life

Photo from MissAmerica.org.

Devanni Partridge, of Auburn, Washington, is competing in the 2010 Miss America pageant while promoting her platform, “Donate Life: The Importance of Organ and Tissue Donation.” Everyone at the National Foundation for Transplants is excited to see this cause in the spotlight, and we hope it will inspire others to register to become organ and tissue donors.

As of today, more than 105,000 people are waiting for lifesaving transplants in the United States. Unless we have more people willing to become organ donors, that number will continue to grow. In fact, every 11 minutes, another name is added to the transplant waiting list. By increasing awareness of this problem, Miss Washington can help save many lives through organ transplants.

To learn more about the importance of organ donation, visit the NFT Web site to take the Transplant Challenge! If you’d like to register to become a bone marrow donor, visit the Be the Match registry. Be sure to tune into the Miss America pageant Saturday, January 30 at 8 p.m. (EST) on TLC.

Tuesday, January 19, 2010

NFT Patient Mikey Noble

In 2008, just days after his 18th birthday, Mikey Noble came down with what he thought was the flu. But when he began to experience uncontrollable nosebleeds, a test showed that his blood pressure was dangerously high. Mikey's life changed in an instant.

After a month in the hospital, Mikey was diagnosed with Wegener granulomatosis, a rare autoimmune disorder which inflames the blood vessels and restricts blood flow to critical organs. Doctors told him a kidney transplant was critical to his survival. Fortunately, in May of last year, he received a new kidney thanks to his uncle who was the donor.

Mikey is doing very well and recently completed his first semester of college. The Gazette in Colorado Springs, Mikey's hometown, featured him in a recent issue. To read this young man's story, click here.

To learn more about Mikey, or to make a donation to NFT in his honor, click here.

Wednesday, January 13, 2010

January Patient of the Month: Misty Lea Hernandez

For some time, Misty Lea suffered from flu-like symptoms that slowly worsened. She eventually began feeling weak, coughing up blood and experiencing swelling in her legs and feet. After a trip to the emergency room, she learned she was suffering from cardiomyopathy. Doctors have told Misty Lea a heart transplant is essential to her survival. She is currently on the transplant waiting list at the Lutheran Hospital in Ft. Wayne, IN.

Despite her health challenges, 24-year-old Misty Lea is determined to beat her illness so she can spend many more years with her young son. She looks forward to being well enough to return to college, where she was studying criminal science. But she needs your help.

A heart transplant costs approximately $775,000. And that's only the beginning. Even with health insurance, Misty Lea faces significant medical expenses. For the rest of her life, she will need follow-up care and daily anti-rejection medications. The medications can cost as much as $5,000 per month--and they are as critical to her survival as the transplant itself.

After receiving the transplant, Misty Lea will be required to relocate more than 100 miles from her home to be closer to the transplant center, incurring significant expenses for travel, food and lodging.

For more information about Misty Lea or any NFT patients, visit our Web site.

Monday, January 11, 2010

Anonymous Donors Bring Christmas Cheer to Transplant Patients

Three anonymous families spread holiday cheer in 2009 to transplant patients and their families. The donor families generously gave gifts and money to provide the patients with a bountiful Christmas. For one donor family, who wishes to remain anonymous, it was their second year to provide hope to a transplant patient’s family in the midst of the holiday season. Their generosity inspired two other families to provide gifts for transplant patients and their families this year.

“We are so touched by the generosity of these three families,” said Jackie Hancock, NFT president. “It’s particularly wonderful that the family from last year has inspired others to follow their example. The Kaurs, Smiths and Wilsons are all struggling to get by, and these gifts will enable them to have a true Christmas celebration this year. What a kind and selfless gesture to make during this season of giving.”

With the help of the National Foundation for Transplants (NFT), three families benefited from these secret Santas:

Rajinder Kaur
Rajinder was diagnosed nine years ago with IgA Nephropathy, an autoimmune disease that causes inflammation and scarring of the kidneys. Doctors discovered this illness during her second pregnancy, and later said a kidney transplant was her only hope for a second chance at life. Fortunately, she received her lifesaving transplant in July 2009, after nearly a year on the waiting list.

Rajinder and her husband, Gurmit Singh, have struggled to keep up with the financial obligations related to her transplant, such as the significant travel and lodging expenses, as the transplant took place more than 1,000 miles from her home. The Kaurs were unsure how they could provide gifts for their two girls, ages 9 and 14, during the holiday season and were thrilled to learn about this family’s generous offer to purchase gifts for them.

“Words cannot describe how helpful this is for our family,” said Gurmit. “With Rajinder’s transplant and the medications, we are having a difficult time, and we are so thankful for this family’s kindness.”

Kim Smith
Kim Smith was diagnosed with end-stage renal disease and diabetic nephropathy in 2003. She endured dialysis treatments for four years, and doctors said a kidney transplant was her only hope for a second chance at life. Fortunately, she received her transplant in November 2009, thanks to a generous living donor.

Kim is an ordained minister but has been unable to work for the past 15 years because of her health problems. She has helped raise 28 children and adopted five herself. Her four youngest children (twin 9-year-olds and two 10-year-olds, all girls) still live with her, and she did not know how she could afford Christmas gifts.

“I am very grateful for this family’s support,” said Kim. “It’s a tremendous help because the finances are so tight.”

Reynaldo Wilson
Reynaldo Wilson began experiencing health problems in 2008 and was diagnosed with a life-threatening liver disease. Around the same time, doctors also discovered a cancer mass on Reynaldo’s right kidney. His liver condition is so severe that he cannot undergo treatment for the cancer until his liver is treated. Doctors say he needs to be evaluated for a liver transplant as soon as possible.

A liver transplant costs more than $500,000. When Wilson began receiving Social Security disability, Medicaid canceled his coverage, stating that his disability income was too high to qualify for Medicaid. Reynaldo and his wife have four children, ranging in age from 2 to 14 years old. His declining health prevents him from working, and the disability income is barely enough for his family to make ends meet. Without coverage, Reynaldo cannot afford the evaluation to determine if a transplant is an option, leaving his family feeling hopeless.

“On behalf of Rey and our entire family, I just want to thank this family for their support,” said Griselda, Reynaldo’s wife. “This has been such a rough year. When I asked Rey what he would like for Christmas, he said, ‘I just want to spend the remaining time I have happy, and have a happy ending.”

Wednesday, January 6, 2010